Here I sit at the NW Cancel Specialist office waiting and wondering…I have read many documents about mycosis fungoides, CTCL, cancer treatments, cancer treatment side effects, and still I sit waiting and wondering. I think I will be doing a lot of that these next few months. I read today that, as far as treatments go, there are many different options and that you can really compare one with another. Why? Because the rarity of the disease and lack of studies on all the various treatments. That sounds encouraging. They say to track your treatments and results so you can find out what works best for you and your body. So, there are about a dozen different treatments for this type of cancer and we aren’t sure which will work best. Looking forward to that game.

Meetings is over - Now we know a couple of things…not much more that what I read…We are 80% through the diagnosis stage. Megan has a CT Scan scheduled.

Here is where we are at and what we do know…

• There is only a 10% chance that this will develop any further than the stage she is currently at. She is at the patches of skin (the appearance of dry flaky skin or psoriasis) stage.

• CTLC –MF (Mycosis Fungoides) is mostly a benign cancer and slow developing type of cancer. If Megan’s CT Scan is clear, than she does not have to do another scan ever (unless she develops symptoms of enlarges lymph nodes – which he said is rare).

• We will meet with a specialist who works at the University Hospital in Portland. He comes highly recommended from our dermatologist. The first meeting with him will be somewhere around the 10th of February. He will help her get rid of (or minimize) her skin patches.